The Standards for Privacy of Individually Identifiable Health Information (Privacy Rule) establishes the national standards for the protection of health information as set forth by the Health Insurance Portability and Accountability Act of 1996 (HIPAA).
As a recruitment source, Dr. Susan Love Foundation's Love Research Army is not a HIPAA-covered entity. However, we have chosen to adhere to all HIPAA guidelines. Dr. Susan Love Foundation expects all scientists and centers that seek volunteers through the Love Research Army follow HIPAA guidelines.
Dr. Susan Love Foundation does not collect or store health information from Love Research Army participants. When and if any health-related questions are asked to determine eligibility for a particular study, the information collected via the RSVP form will NOT be stored electronically or physically. If needed, contact information for Love Research Army members who sign up for a supported study will be provided to the research team, following confirmation of their Institutional Review Board (IRB)'s approval to contact potential study volunteers.