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Sister Survivor: Improving the Survivorship Care of African-American Women with Breast Cancer

Kimlin Ashing-Giwa, PhD, City of Hope and African American Breast Cancer Coalition
Study abstract

The research team will implement and evaluate the impact of a multilevel peer navigator (PN) intervention for African-American breast cancer survivors (AABCS) on comprehension of and adherence to survivorship care plan (SCP).

25 PN will be trained to provide navigation to AABCS. 120 participants will be randomized to either PN intervention (n=60) or control (n=60) conditions. The peer navigation sessions will be delivered via face-to face or by telephone. The Peer Navigator trial is accomplished through 5 processes: 1) Information: PN provide education and resources about the effects of breast cancer and its treatments, care planning, physical functioning; 2) Patient activation: coaching in medical efficacy and communication; 3) Providing support: PN listen, share, and attend to the human side; 4) Access: facilitate utilization of healthcare resources/services, access to SCP; 5) Coordination: facilitate utilization of healthcare, adherence to SCP.

Study review

This study at City of Hope in Duarte, Calif., in collaboration with the African American Breast Cancer Coalition, is evaluating the impact of a peer navigator program on helping African-American breast cancer survivors obtain and follow a survivorship care plan. A survivorship care plan consists of two components: a treatment summary describing the cancer diagnosis, history, stage, and primary treatments received; and a follow-up care plan that includes information on recovering from treatment, ways to maintain good health, and recommendations for care. The researchers needed to enroll up to 120 African-American volunteers in the Los Angeles area who were less than a year out from having completed surgery, radiation and/or chemotherapy. They used a variety of recruitment methods, including the Army of Women (AOW). The Call to Action for this study was sent to AOW members on April 25, 2012. The researchers closed enrollment on Jan. 30, 2015, after the AOW provided them with 10 women who were interested in enrolling in the study.