Genomic Analysis of Long-Term Survivors with Metastatic Cancer

Mark Burkard, MD, PhD, University of Wisconsin Carbone Cancer Center, Madison, Wisconsin

Some people live for many years following a metastatic breast cancer diagnosis. To gain insight into why, researchers want to learn more about the medical history and health habits of people living with metastatic breast cancer. If you take part in this study, you will complete an online survey that will ask you questions about diet, exercise, health behaviors and medical care. Some participants who fill out the survey will also be invited to participate in an optional sub-study, which includes a medical record review, a blood or saliva sample, and tumor analysis. Findings from the survey and optional sub-study may help the research team discover how to help people live longer after a diagnosis of metastatic breast cancer.

What does participation involve?

If you agree to be in this study, you will receive a link to an online survey that includes questions about your medical history, cancer care, and lifestyle. The survey should take about 60 minutes to complete. It does not have to be completed in one sitting. Your answers will be confidential and will not be shared with anyone outside of the research team.

Some women or men who complete the survey will be invited to participate in an optional sub-study that will look for genetic factors that may be linked to the length of time they live after a metastatic breast cancer diagnosis. For the sub-study, you will be asked to provide a blood or saliva sample. The research team will ask you for permission to review your medical records. They will also ask for permission to see if your hospital has a tumor sample stored from your previous surgery or biopsy that is available for analysis.

U.S. and Internationally